Finding top-notch medical help for Sjogren's Syndrome
Unfortunately, Sjogren's Syndrome is still poorly understood by
many medical people. Furthermore, a Sjogren's patient usually needs
a whole team of
caregivers, because the disease crosses the boundaries of
Good care can make a huge difference to
the patient. For example,
it can mean that you get to keep your teeth by treating your dryness, instead of losing your teeth
despite a series of painful but futile dental procedures. Or, it can mean that you
get medical treatment that helps your fatigue.
How do you find the real experts in Sjogren's Syndrome?
The usual methods of asking your friends and physicians for referrals
won't necessarily work. Consider also the following approaches:
The most generally effective method, by far,
is to contact your national
organization for Sjogren's
Syndrome. You could be just a phone call away from
receiving a list of Sjogren's-competent practitioners
in your area. When you contact these organizations,
please consider buying a membership in order to
support their important work.
- If referrals from your national organization are unavailable
in your area, or inadequate for some other reason,
consider the following options:
- If your national organization has a local chapter in your area, its members
can provide firsthand information about physicians in your area
who treat Sjogren's Syndrome.
- Members of the SS-L email list can provide firsthand information
about their own physicians.
- As you browse
More resources for Sjogren's Syndrome, you may see a mention of a
researcher or a doctor/author who is a world-class resource and is local to you.
They may be too busy to see you, but a referral from such a person could be good.